Overview
The National Organization for Rare Disorders (NORD) is a non-profit organization that provides advocacy, education, and research support for patients with rare diseases. Founded in 1983 by Abbey Meyers and a group of patient advocates, NORD has grown to become a leading voice in the rare disease community, with over 300 member organizations. With a Vibe score of 8, NORD has been instrumental in shaping rare disease policy and promoting awareness about the challenges faced by patients with rare conditions. According to NORD, there are over 7,000 rare diseases affecting approximately 30 million people in the United States, with 75% of rare diseases affecting children. The organization's work has been influenced by key figures such as Francis Collins, Director of the National Institutes of Health, and has been recognized by the FDA and other regulatory agencies. As the rare disease landscape continues to evolve, NORD's influence will likely continue to grow, with potential implications for the development of new treatments and therapies.
Key Facts
- Year
- 1983
- Origin
- United States
- Category
- Health and Medicine
- Type
- Non-Profit Organization